We started this website in the hopes we could help spread the word about a very cruel disease that is killing our children called Niemann Pick Type C (NPC). Niemann Pick Type C is a neuro-degenerate disease which means a child with NPC progressively gets worse. It's a disease that strikes children through accumulation of excess fats in the cells of the liver, spleen and brain. Neurological problems worsen in time with NPC the child will lose coordination, stumble, fall, and eventually need a wheelchair, hospital bed and other adaptive equipment. As the disease progresses other symptoms begin to develop such as the lose of speech, the ability to swallow, and seizures may occur. The health of the child will continue to decline until the disease claims their life. There is no cure at this time for NPC.
